Happy Birthday Jeremy

We love you!

Finding a New Normal

We situate ourselves around the living room, comfy in our niches, lunches in our laps, while I hit “play” and start a movie on the DVD player. For several years now this has been a daily ritual for Mom and I and whoever is home to join us. Although I’ve got the back speakers playing next to Mom’s favorite chair, I haven’t turned on the English subtitles because she is no longer there to need them. Her empty chair isn’t normal, but nothing is since she died.

 

Our year of “firsts” has officially begun. The first time I set the table without her place, the first time I didn’t get up two hours early to help her get ready for church, the first time we ate at our favorite Mexican restaurant and didn’t order her pork burrito with rice and beans, the first time Ellie slept by herself in Mom’s empty room. The big things are still to come, like her birthday and holidays, but it’s the little things that creep up unexpectedly to lay us low, to start the tears. Her cup of pencils, pens, and lipstick by her chair, the half-dozen bottles of scented hand creams scattered around the house that I don’t use, the appointment reminders I forgot to cancel, her sunglasses waiting for her in the pocket of the car door. Of course, those are objects that I can sort through and put away, but the random habits and memories are different.

 

“You won’t know what to do with yourself when you no longer have to get me in and out of the car,” she said. That’s true. It’s much easier now to jump in and take off for the park or run into the grocery store for a couple things, but it’s also lonelier. I can substitute teach as much as I want, take classes guilt-free, come and go when I want for as long as I want, and hibernate for hours in my scrapbooking room, but Mom will never again be within my sight when I need her. I don’t have to include special foods in our meals, make conversation when I’m tired, empty the commode in the morning, or sleep with one ear on the monitor, but those things had become normal and I am feeling lost without them. Or is it lost without her?

 

Yet, my heart knows, despite the emptiness, that although the monitor to her room is turned off, she is not far away and we are not separated permanently. At the last she was suffering and tired and weak and ready to “go home to Aunt Blanche.” I told her to go; I whispered, “It’s ok. It’s time. Go home and dance,” and she did so now I just have to find a new sense of normal. I have to go on and live my life the way she went on and lived hers right to the end. A new normal. Not without her, exactly, but with her imprint woven in a new context within the fibers of our lives.

Happy Birthday, Sarah

Rest

And suddenly, it's over. Mom and I both let go; not because we wanted to, but because it was time. Time for her to be strong and whole again. Time for her to be free. Time for her to dance in heaven. Time for me to mourn.

To Bed, to Bed, Said Sleepyhead

I’m ready to get up.

I want to go to the toilet.

Can I have a drink of water?

What time is it?

I want to go to bed.

I want to sit up.

I need help.

Where is everyone?

I forgot.

I don’t know.

No, this is not a four-year old talking. These are the late night responses of my 98-year old mother after she has yelled for me in her barely-audible voice and I have stumbled out of bed and slid down a flight of stairs and steep wheel chair ramp in a sleepy haze to ask her, “What do you want, Mom?”

It would be funny. In another lifetime. If I wasn’t so-o-o-o tired. But that’s life around here these days and I don’t think it is going to change anytime soon. Mom has her days and nights mixed up and no matter what we do to try to fix it, I still come up short on sleep. It doesn’t seem to make much difference if Mom stays awake all day, or if she sleeps in a recliner instead of the bed, or if she takes Benedryl or another light medication recommended by Hospice that produces drowsiness as a side effect. Whatever Sundowner-type phenomenon thing is happening, this childish, illogical, sleep-challenged person that I am now sharing a bedroom with, is not my real mom during these nocturnal hours. I can’t reason, cajole, placate, demand, or even guilt her into lying still. She is absolutely driven into getting the covers off and spinning her body sideways on the bed every twenty minutes so that her legs drape off the edge before she determinedly starts screeching for help.

Of all the caregiving challenges we have faced so far, sleep deprivation has always been my nemesis; the more tired I get, the more impatient I become and that is not what I want to subject these people to, whom I love so much. So, I spend all my waking hours trying to come up with a better plan for the coming night and spend all my sleepless late night hours praying to get through this phase as calmly and quickly as possible. As I get ready for yet another long night, I try to remind myself that this, too, shall pass and I will look back with thankfulness that I had the opportunity to share the struggle with Mom and that we made it through.

Digging In: A New Patio

The back deck area is in a state of rennovation. This is Jeremy's project but Danielle has been helping whenever she gets home and, of course, there is an assortment of furry overseers who inspect the work. Even Grammy comes out or peeks from her bedroom doorway periodically to monitor and inspire progress.

As with all changes, the first step is that of evaluation and demolition. Spongy and rotten boards from the old deck were removed, some long ago and others more recently. A tree stump was toppled, plants were potted, overrun grass, weeds, and mint were dug up, pond elements were saved, and a hole was filled in. This weekend saw the transition from demolition to preparation as the ground began to be leveled and sloped away from the house. Ah, the satisfaction of back-breaking, sweat-dripping, dirt-under-the-fingernails work that measures progress in square inches of cleared ground.

And the best part? All I have to do is...watch!

It's Time

Have you ever helped a child learn to ride a bike? I don’t know any way to do it other than grab onto a handlebar with one hand, the back of the seat with the other, and run along with the child until they develop their own balance. As any biker knows, crashing is not fun, so parents hang on tight, issuing orders like “Pedal faster!” and “Don’t look at me; watch where you’re going!” Remember what it was like, though, when you finally let go? At first I didn’t want the kids to know so I would run along side calling, “Keep going!” But when they pulled ahead of me and I could no longer keep up with them, pride turned quickly to panic. I knew what skinned knees and cut hands felt like and my kids were learning on gravel roads, which was worse than pavement. Suddenly I was yelling, “Stop! Push the pedals backward! Stop! Sto-o-o-o-p!”

I’ve had that same reaction in other areas of life. As a parent, a teacher, and a caregiver, letting go has always been difficult for me, yet I know it is an inevitable part of life and as important as hanging on. The trick is in the timing. Whether it is dreams, ideals, relationships, goals, strife, or life, there is a time for hanging on and giving it all the tenacity you’ve got while also asking God to help fill in the thin spots. If we quit before we start, before we weather some mistakes and bumps and bruises, we don’t accomplish much. Yet, there is also a time for letting go that is just as healthy, though, for me, much harder. It is easy to think of letting go as failure, but when the timing is right, it is not failure but the willingness to let change happen, to move ahead, to enter the unknown. I cannot become better at anything unless I hang onto my mistakes long enough to learn from them and then let them go so they don’t become permanent stumbling blocks. As dynamic beings, our goals, dreams, and relationships must grow and alter to better fit new situations and new phases. In my life, my biggest challenges have been in letting go of grudges, preconceived ideas, people and pets I love, and control.

Faith is said to be a gift, but I also think it is a choice, a verb, and I choose to believe the journey through this flesh-and-blood life is not all there is. Perhaps that choice is a comforting way of hanging on, but I am also learning that practicing such a faith involves a lot of letting go. So, as Mom’s grip on this life weakens, I struggle for the readiness to let her move on without me for a spell.

Grandogs

We have been dog-sitting for Jeremy this winter while he has been ricocheting between coasts with his work. It has been an enlightening experience for these city dwelling dogs. The first-floor window view of cats, dogs, and people passing by is a fascinating pastime that begets a competitive barking game similar to the human version of Slug Bug. Being tethered in a backyard was actually quite perplexing at first. Who knew that lines could cross so easily or that bolting beyond the end of the tether’s reach would be so unforgiving? Do cats know that instinctively? At any rate, Cinder and Millie have discovered the joys of lying in the cool grass, distinguishing the barks of neighbors from those of transients, and dragging Grandma and Grandpa around the yard in search of the best potty spots. While Millie becomes one with nature and plays an intense statuesque game of cat-watching, Cinder has discovered the painful source of buzzing in the clover, where to find the best chewing sticks, and how to protectively strut across his domain to impress the birds and squirrels (because no one else is looking). What a couple of characters!

Facelift

When the kids hit home, there’s no telling what might happen. Sometimes everyone crashes and we step over and around sleeping bodies draped throughout the living room. Other times, we are roused out of sleep by major laughter and raised voices downstairs as sibling rivalry carries through a midnight game of Slap Jack, Risk, or Wii.

A couple weeks ago, in early May, the dominant spirit seemed to revolve around demolition and renovation. While Jeremy and Danielle tackled dismantling the outside deck in preparation for something new, Sarah launched an attack on the inner domain. 1970s wallpaper, and in one case a double layer of 1950s wallpaper beneath, was stripped and replaced with fresh paint. Old carpeting was hauled to the dump, belongings were sorted, given away, and organized, and renewed surfaces were covered with new area rugs and duvets. What a breath of fresh air!

Trust Me

Danielle’s friend, Ashley, began coming to the house to give Mom perms shortly after she earned her beautician’s license. After going without perms for several years because lying back in the chair or leaning too far forward made her dizzy, it was a huge treat for Mom to have it done again. Alas, however, Ashley eventually moved to Montana so it was a great surprise when she appeared at the door the other day wanting to set up a time to do Mom’s hair while she was home visiting family for the week.

Mom was on the tail end of recovering from the fluid build-up in her system that is an occasional arrhythmia complication, so her first reaction was that it would be too much effort. Taking a chance that she was actually able to weather the process, I insisted that we try so she begrudgingly let us roll her into the kitchen and start. These role-reversed decisions are becoming more frequent. Instead of her cornering me to take a bath, amid avid 8-year old protesting, it is now me pushing past her 98-year old grumping long enough to do something that I feel sure will please her in the end. And, thankfully, this time it did.

Because Ashley could not bring her perm supplies on the plane, she had gone to the trouble of purchasing new curlers, chemicals, and papers for this rendezvous. However, buying another special cape to wrap around Mom’s head and funnel the rinse water into the kitchen sink was not an option so we improvised by using a clean shower curtain of mine to fashion a substitute. The first time, it worked great, but silliness during the second rinse resulted in leaks and minor flooding on the floor. Of course, we stopped to take a picture because, by then, Mom was laughing and quite happy to overlook the drips.

I am thankful that the gamble paid off and Mom is enjoying her perm. Ashley promised to be back next Christmas to do it again, although, I suspect that Mom may not be up to it by then and the effort may too greatly outweigh the resulting pleasure. Some of her appointments are becoming too cumbersome for her now, as well. For instance, at her last annual eye exam she had to be transferred three or four times because her wheel chair didn’t get close enough to the machines. Yet only one of those tests is really necessary for maintaining her quality of life at this point. It is a hard call as to what is truly essential and when; caregivers in all walks of life need lots of prayers to help them make the right decisions at the right moments.

Seeing the Positive Side: If You Can't Laugh, It's Time to Quit

This blog was meant to help me sift through the mundane of my life in an effort to glimpse, name, and enjoy the intertwining, often hidden but miraculous nuggets of light that bring healing, enlightenment, joy, release, hope, or sustenance. Lately, however, I have been up to my armpits in a mire of sticky self-pity that threatens to suck the happiness and appreciation for life right out of me; so I’m going back to a basic litany (God bless my Catholic roots) of appreciation in order to get back on track. Please excuse the slightly ironic tone, but the humor does me good.

God bless Annie, who takes care of Mom when I have errands and whose recent two week absence was a painful reminder of the importance of back-up relief.

God bless Mom’s failing short-term memory. The repetition gets annoying, but there is a definite grace in having second and third chances to say or do something better.

God bless the unrelenting demands and furniture- and finger-endangering wild games of pets; for their antics lighten the load, their evident appreciation of us is satisfying, and their snuggling extends a blanket of peace.

God bless our veterinarian, who not only treats our pets, but is also sensitive to my state of mind as well. Who knew that his doctorate also seemed to cover detecting the acrid scent of imminent emotional implosion so that he could adroitly turn the conversation from cat lice to “How are you doing with Mom?” and really care about the answer?

God bless the stray pets who post “Easy Target” signs that point to our house as an inn that welcomes everyone; especially the cats who use our premises as a love nest when in heat.

God bless Mom, who is oblivious to the steady drag of time while she concentrates so hard on making sure that she puts deodorant on at least three times when getting ready in the morning and who increases my prayer life as I think to myself during transfers:  For the love of GOD! PLEASE… take…a...STEP!

God bless God, who sometimes gives me exactly what I want and then watches with muffled snickering while I wrestle with the idiocy of my self-inflicted predicament and relearn the concepts of humility and letting go.

God bless children who call, text, Skype, or pop in at just the right moment with their boundless, optimistic energy to turn our static, “old-farts world” upside down just long enough to get the blood flowing and then set us aright again before sailing out on the next high tide.

God bless scheming friends who talk me into midnight hot-tub dates if that’s the only time I can get away, cook shrimp for lunch rather than go out, listen without judgment, and keep me laughing, for they make me feel less alone.

God bless everyone in my household who can take care of themselves without noticeable spitting, farting, or grunting.

God bless Mom, who renews my spirit whenever she smiles or laughs.

And God bless Annie again, who is moving away in August, which will undoubtedly be followed closely by another implosion on my part.

Happy Birthday, Danielle!

Gifted

Happy Birthday Jennifer!

Everyday Life

With me hanging on to one elbow, she slowly hitches herself up the 1.5 inches onto her bathroom scales, groaning, straining, and clutching the counter in front of her as if she were balancing atop a fifty-foot flag pole. The scales are placed in front of the bathroom sink so that she can hang on to the counter to get her balance, but then it takes all Mom’s resolve to unclutch her fingers long enough for me to get the true reading of her weight. This hated ritual is necessary because an overnight two to three pound gain or a one pound gain for five consecutive days indicates renal failure. A couple weeks ago this indicator and some other symptoms cropped up just before a weekend so I put in a call to her doctor and her medicine was readjusted for a few days to drain off more fluid. This tends to irritate her kidneys, but by the third day of double the usual number of bathroom trips, Mom was better and has remained okay even after the water pill went back to the usual dosage. Here we are on that proverbial rollercoaster again. The twists and turns, highs and lows of our journey are getting more frequent and more disconcerting.

 

 

After dodging that bullet, life evened out for a few days until Mom had her annual eye appointment. Then, in one day she ping ponged between being angry with me for not telling her about the afternoon appointment until she got up that morning, feeling embarrassed once she got there because she had to take off her hat which had messed up her hair, being irritated over all the waiting between tests, tiring out from the physical struggle of several transfers from her wheel chair, and the final relief of finding out in the end that her eye health had remained stable. I think the emotional ups and downs of days like these are as draining for us as the physical challenges.

Ordinary Heroes

Ordinary days can become extraordinary when you answer the call for help. I hadn't even heard about these heroes...

Thank You

I was really moved by this video from Japan. The sincerity of the people, the simple message, and the emotion touched me deeply. It also made me reflect on my past refusals of help when I didn’t want to burden someone else or I had no way to repay them. In other words, I let my pride make the decision for me.

But Japan’s choice to accept help from other nations after the devastation by the tsunami eleven months ago empowered them to turn a tragic story into one of hope and healing; a success that now ripples out to all who were part of the aid effort. To me, this story is a reminder of the powerful gift that those who may feel utterly powerless have to give, even as they struggle.

Mom and I are involved in the daily tension of giving and receiving. At first glance, it seems like I am doing the former, she the latter, but it really doesn’t work that way. She may need me to help her stand up and totter over to the sink every morning, but I also need her to accept and apply my help to her own strength. If she refuses to receive the hand that I reach out to her, then neither of us accomplishes anything; but if she accepts by grasping it with her own, then her need gets met and she gives me the priceless gift of seeing her empowered to succeed. We both become givers and receivers; each humbled by our vulnerability to rejection, with the end result that she feels less alone and I feel part of her triumph. How easily the sin of pride could undermine this powerful exchange.

Arigato, Tohoku, for the poignant reminder.

Vacancy

“I’m feeling a little vacancy.” That’s how Aunt Blanche would sometimes, rather tongue-in-cheek, express hunger. Well, I’ve been feeling a little vacancy, too, these days, but not in my stomach. I have been staring at this blog for months, wanting to reach out with meaningful words; set down some sort of record. At first I blamed my creative deficiency on lack of time, then on lack of interesting activity; after all, one day looks pretty much like the next around here. Yet, there has been something brewing beneath the surface of my psyche that I need to say.

Perhaps the stage of care giving and receiving that Mom and I are in is to blame. Some days the feelings are too deep or too personal to set into print and on others they are too shallow and self-centered; exposing the worst of me at a time when I am trying to exercise the best. Or maybe it’s that my feelings are just too jumbled right now.

All I know is that when I go to write, I am empty.

Void.
Flat.

In fact, my conversations tend to be the same.

I have nothing to add.
Ever.

The natural inclination, of course, is to look for solutions.

Get out more.
Keep busy.
Exercise.
Find things to do together.
Grab some alone time.
But, honestly, I know all that; it’s what we’ve been trying to do. This problem is something else.

I have decided that Mom and I are both just tired right now; tired of ourselves, our complaints, and each other, and each other’s complaints…and demands. We’re trapped; me willingly, her not so much. And frankly, I don’t think there is a specific cure for what I feel right now. It just is what it is. Maybe restlessness is a natural part of this journey and the best thing I can do is acknowledge the emptiness it conjures so that it doesn’t become overwhelming and then continue on with as much tenacity as I can muster. So with this post, here I am, moving forward again with renewed resolve.

Happy Birthday Fearless Leader

Motivation